My Head Wants To Explode

It's been over a month since we lost auntie and nothing has slowed down.  We got through the memorial and then everything went crazy.  Between mom's doctor appointments and all the errands that need to be done for her there hasn't been any days off.  Anytime anything is scheduled now, they schedule it for my days off.  Have they forgotten why I'm retired?  We spent last weekend cleaning up mom's house because of all the crap we have to put in there from aunties.  The scary part is that we filled a dumpster that will hold 10 tons, not that there are 10 tons in it, but damn it's full.  All of my brothers and sisters were there this weekend, cleaning, building, painting, although my oldest brother seemed to only supervise and my oldest sister's behind rarely came off the lazy boy she was sitting in while shredding paperwork.

Growing up I was shocked to see that as dysfunctional my family is, we're still rare in that we still pull together in the tough times.  And at least my brothers and sisters won't let mom down.  The grandchildren are another story.  The younger grandchildren were there, 19, 17, 14 and 12 but the ones in their 20's and 30's were nowhere in sight.  One of my brother's theory is that if his kids weren't there to help, they don't get crap, the oldest sister doesn't agree and grabbed whatever she could for her children, her son, at least showed up late Sunday night to mow the lawn and does that every two weeks or so, but her daughter as well as the daughter of another sister just couldn't be bothered.  I know people and even have friends that tell me that I shouldn't let my family dictate my life, to control me and that I should tell them exactly where to go.  But I can't do that, maybe the it was the way I was brought up, the fact that I'm truly codependent but my family is all I have in the end.  I'll always have friends here and there but it's not the same.  My parents taught me to respect and listen to my elders, even if they're more messed up than I am.  A phrase my niece said comes to mind, it's a blessing yet a curse.

I paid the price for everything I did this weekend and got told very rudely by work that they were short staffed when I called in sick on Monday.  My right had has swollen to 3 times the normal size and I could open it.  My back, neck and shoulders were a train wreck and I called in over 3 hours early so they could try and get someone in.  I felt bad enough about having to call in sick, I didn't need a frickin' guilt trip.

Today, my hand has gone down, still swollen and sore but I can at least type and write with it.  I went over to check on mom, spent a little time with her, then finally did some grocery shopping and a quick bite with a friend.  I paid for his dinner and he says I should of but he has no idea how much venting to him has helped me over the months.  I got home and finally had time to do some laundry, kind of gross that I hadn't done it in over two weeks but I just never had the time or energy.

Back to work tomorrow and if they give me lip they can kiss my behind.  As much as I need the job and the money, I'll quit if it comes to them or mom.  Thursday is back to mom's to take her grocery shopping, close out the storage unit and have someone come for an estimate on the windows.  I told her I'd take her grocery shopping every Thursday, it's a something her and auntie used to do and she really shouldn't be driving. Next month she has 5 doctor appointments and another window estimate on my days off.  I've been informed that since we didn't finish everything last weekend, we're going meeting back there Sunday.  I already told them I'm not doing all the stuff I did before.  I know another sister had to call in sick yesterday as well.  I feel like my life is gone and that the family has taken over again.  And I'm really tired. 

Oh and I finally posted a shot for the fuzzy challenge.  It's kind of gross when you realize that all that fuzz on the candle is a HUGE layer of dust.

Do you believe in signs?

I woke up early this morning.  For as late as I crawled into bed and as exhausted as I was, it was early.  By the time I decided to crawl out of bed and left Murphy out it was after 8:00 a.m.  When I let her in the sprinklers were on, I grabbed my camera and I caught this.  I've been wanted to catch a rainbow for sometime.  This isn't the type I thought I'd snap but it was just as pretty and was very shocked and happy that I got it.

The dog and I laid around for a bit and then I decided that maybe we should get out.  I called my sister and checked to see if it was okay to come over.  I thought that Murph would enjoy playing with her cousin Kiku for a nice change.  I'd been gone so much that she's been pretty neglected for attention lately and she loves car rides. 

As I was on the phone with my sister she had another call come in, switched over to grab it and then came back.  All I heard was "she's gone, get to mom's".  I immediately started to get dressed and my phone rang again, it was my brother calling to tell me.  He didn't know that I was on the phone with my sister when he called her.  Auntie had passed away this morning, they were trying to get ahold of my sister but they couldn't reach her so they called mom's house.  Mom went to the grocery store and my brother got the news.  Within 30-45 minutes my three sisters, my niece and I were at the house waiting for mom to come home from the store.  By the time my we were going to the hospital my brother had arrived with his two girls.  My niece and I decided to let my three sisters and mom go to the hospital while we waited for my brother from Stockton to arrive.  Eventually every one trickled in, My brother and sister-in-law from Stockton, one brother-in-law and then my other brother-in-law and nephew who had been camping up at Donner.  Another niece showed up and then the other.  Right now my mom's house is full of family.  I decided to come home and let Murph out but really, I just needed to get out of there for a bit.  With so many people talking at once and the TV going I needed a bit of quiet and my dog.  When I left they were ordering dinner, a house less than 1100 square feet packed with people.

I loved my aunt, I'll miss my aunt but I'm glad my aunt is now at peace.

We are all but creatures of habit

I feel like I'm on autopilot of a sort.  I observed that we are all really just creatures of habit.  Whether that habit be a regular schedule or a habit of flying by the seat of our pants, we're all creatures of habit.  I've also noticed as of late that we tend to do destructive things when our habits are disrupted.

My teenaged niece and my oldest sister are stress munchers.  Yesterday my sister needed munchies as we waited in the ER today my niece went down with my sister to get coffee and came back with a bag full of goodies from the gift shop.  I watched as she opened every bag she bought and munched on something.  Me, I buy things.  I'm managed to stay within reason so far.  When my sister wanted me to pick up munchies on the way back to the ER, I grabbed a basket and the grocery store and filled it with junk, snapple, godiva chocolate drinks, water, twinkies, candy, chex mix and so on.  I kept it under $30.00 but that was a lot of munchies.  Today I stopped at the grocery store for breakfast before work.  Picking up one bagel became three, then 2 lbs of strawberries, a dozen cupcakes and lunch.  I gave the cupcakes and the strawberries to the staff at work.  I told them it was for my birthday last week, which was partly the truth, I was thinking that as I was picking them up but it was also a destructive habit.

Today the sister with all the decision power for the care of my aunt broke down.  I have two sisters that are, well how can I say it other than a bit hard.  Sometimes their lack of emotions scare me.  Wednesday one broke down on another sister during a phone conversation about auntie.  Today, the oldest broke down on me.  They had legally had to call her and when the time came for her to be tough and say "no", she couldn't.  She let them put a few tubes in my aunt that she would have never wanted.  I have to admit that when I called my niece for an update I was quite shocked to find out about the feeding tube.  I went to the hospital, my mom, sister and niece where there, my brother came a bit later.  When her chemotherapy oncologist came in we conference called my oldest sister on the phone.  The on-call doctor had already called her and told her that it wasn't likely auntie would be coming out of the hospital.  Her oncologist had a different view, and although his words said one thing, his face said something different and we all saw it.

We all went to dinner and then back to mom's.  After we all left I stopped at my oldest sister's to check up on her, and to discuss some of the things we needed to do.  She fell apart on me.  I saw my sister as human, something I really never thought I would see.  She said she knew she did the wrong thing.  She said that she knew what auntie wants and when the time came, she couldn't do it.  She thought she was strong enough to make the decision but when the doctor asked whether or not to put a feeding tube in, she couldn't make the decision auntie wanted.  She feels she let auntie down and she couldn't come to the hospital because she was afraid of looking into auntie's eyes.  I did the only think I could, I held her and told her that it was alright, that in her place, I don't know if I wouldn't of done the same.  I also told her that if she didn't feel anything  I would have worried, the fact that she had doubts and that she couldn't means that she's cares.  As much as I love to give hugs, my family just doesn't do that thing, they don't hug.  I hugged my sister today, I told her that no one in the family would have faulted her for any decision because we all know the reality.  I told her we just have to take it one day at a time and we'll see after the weekend when her Oncologist rechecks her whether we want to keep her this way.  It's all we can do right now, that and allow ourselves to cry.

Can a day get any longer?

Yesterday was bad, it was a sister's turn to take them and it started bad.  Auntie didn't want to get dressed, didn't want to go, cried, but my sister go her to go.  Because she can't eat they put her on an IV drip for 4 hours yesterday.  In between all that my sister got panicked and flooded her car stressing her out even more.  This particular sister doesn't get very emotional but when she called another sister that night she broke down.

Today was bad, it was my turn and she again didn't want to go.  We got her in the car and to the center, in a wheelchair into treatment.  She could barely stand, she couldn't put her dentures in due to all the sores in her mouth.  She fell asleep in the wheelchair as she waited for radiation, in her sleep she kept saying itai, itai, and sayonara, sayonara.  Itai means it hurts and well, sayonara means goodbye, she was completely out.  Once she was wheeled into treatment I took a huge breath and went to the lobby with mom.  I went in the back to use the restroom and found the technician had wheeled her out.  He said she didn't want to get up, she just cried so he was going to talk to her in a private room and had me follow.  He proceeded to talk to her in Japanese and I could see the sadness in his eyes when she wasn't responsive.  It took everything not to fall apart in front of him.  She didn't want to go and although he said they could put her on the table they didn't want to force her.  He went to talk to the doctor and in the meantime I got mom and once we got her to understand that it was only two more treatments, today and tomorrow, and she was done she agreed.  

It took three technicians to put her on the table.  Even down to less than 120 lbs, she's dead weight.  After her treatment the doctor came in for her weekly Radiation Oncologist meeting.  This doctor is the partner of her doctor but I really wish he was her doctor, he listens and understands more than her doctor.  After I explained that can't eat, or drink, can't swallow, can't take any medication he automatically wanted to hospitalize her.  My sister kept asking them yesterday about that but she couldn't get any one to help her.  After calling her Chemotherapy Oncologist the agreed that she needed to be hospitalized.  

I was instructed to take her to the ER across the street so they cold administer fluids and admit her.  Her nurse, Beverly, was amazing, she so understood everything going on, she'd experienced herself with both her parents and during time working in a hospice.  Although I felt so bad that she had to go through the same, I was very grateful that she understood and helped so much.

The wounds in the area are so bad that no cream in the world was going to help.  She was in so much pain.  The gave her fluids and morphine, but it didn't help so they have her something else which I can't remember the name of.  She mostly slept but would open her eyes when a nurse would come in to check something.  Hour later she would be given a room and set up for the night.  The calendar that I keep, which has all her appointments in it and notes from her appointments would be a saving grace.  Over the months my siblings would laugh at my book but because my memory sucks it was the only way for me to remember things.  My sisters would be asked questions by a nurse or a doctor,which they had no clue of the answers.  I'd open my book and with a glance had it.  When they finally put her in a room, the nurse told two of my sisters she'd have questions, to which the walked out of the room and got me from the waiting area.

Mom is so tired, her eyes are swollen and red, she was getting upset at one doctor for asking so many questions that my sisters had to pull her out of the room for a bit.  He was only doing his job and by the time I got in there to answer questions he was a bit apologetic , to which I told him there was no reason to be.

It was almost 9:00 pm by the time we left the hospital, some of us took mom to dinner.  By that time we were all starving but at least we were able to laugh around the table.  A journey that started about 9;15 am finally ended about  10:30 pm.  Thing is, even as out of it as my aunt is, the only thing she that concerned her was her Advanced Medical Directive.  She had moved it away from her will and power of attorney and she was afraid we didn't find it.  We all know she's given up and it's time to respect her wishes.  Work will be hard tomorrow, I know I'll probably panic everytime the one back line I gave them rings. 

In a daze...

I feel like I'm at a loss.  Auntie has been going downhill very quickly.  All the effects of Chemotherapy and Radiation just started to hit her big time in the last week or so.  She has 3 treatments of Radiation left and she's done but there are other problems.  With Chemotherapy either by IV or pill form there are side effects, nausea, skin peeling on the fingers and feet, exhaustion.  All she wants to do is sleep and she won't eat.  The last few days she'd take her pills and then vomit them up.  The doctor took her off the Chemo pills today telling her that he thinks they've done all they can.  He said hopefully they'll be out of her system in the next few days and she won't be so sick.  Then he said something he meant to encourage her but he really shouldn't of said.  He told her he was proud of her, that she' lasted this long and that he really didn't think she'd make it through the process but that she's proven him wrong.  I know he didn't mean it to sound bad, but when you're 84, sick, and depressed, it's not something you want to hear.  

The other problem is my mom, her health and attitude is going downhill because of all of this.  She's totally lost her patience, not that she had much to begin with and she yells.  I found out today that she feels like I'm treating her like a baby, just like I treat my aunt.  I feel really bad about that but all I've really done is try to reason with her and get her to stop yelling at auntie for things that can't be controlled.  I know in a way my aunt is taking advantage of her, especially with the guilt trips, but my mom guilts herself out.  I guess I got that from her.  

Today we were cut off by someone on the way home, then the person tried to cut us off again and I hit the horn.  My mother, with ours and his window rolled down, puts her head out the window and starts yelling at him, "Don't you know how to drive?!?!?!", "You're going to kill someone the way you drive!!".  I had to pull her inside and calm her down, explaining that especially in the area we were in, that you don't yell out the window.  The ladies at the front desk of the Cancer Center asked me today "Is your mom still yelling at you?", I had to reply with yes, but it's mostly her taking her frustrations out on me and venting.  I suppose this is my way of venting along with a friend that who's been great in letting me bend his ear.

I had my sister fill out the inquiry sheet for a nursing home but she wanted to wait to send it.  I understand that she feels that mom isn't ready, but I'm not ready to lose mom and if we don't do something soon, we're going to.   I feel like I've aged 10 years today, but my sister proved my point that they don't listen to me.  I gave her an update when I walked in the door, and 20 minutes later she was totally shocked by something I said.  I explained that I told  her that earlier and then told her that she doesn't listen to which she didn't deny.  

Calgon, take me to Chicago!

Arrrrrrrrrggggggggghhhhhh!!!!!

Breathe in, breathe out, breathe in, breathe out.  I just have to keep telling myself that.  After today auntie only has 8 more radiation treatments left.  I wish I could say it will be over after that but it won't be.  She's got an appointment with the new surgeon on the 22nd in the afternoon.  Auntie, mom and one of my sisters didn't like the first surgeon and although the two oncologists say he's a good doctor with no personality, the both agree that auntie needs to be comfortable with him.  When I got all the information for the new surgeon I asked my sister to make the appointment because it's hard for me to call from work.  She told me she was gong to make it for one of my days off.  Yeah of course, lets make all the damn appointments for my day off.  I told her fine, as long as it wasn't the 22nd, that I have and appointment I already had rescheduled because it was during auntie's radiation.  Of course I put in a stupid comment of "unless it's in the afternoon because my appointment is in the morning".  Yeah, really stupid, my sister emails me that the surgeon wanted to wait until after radiation was completed and that the 22nd would be perfect.  What tha?  When I ask my sister, or course she throws the "you said unless it was in the afternoon" quote me, and as much as she got me, you'd think she's have a bit of pity on me.  I told her that doctor runs late so I'll try really hard to get her there by 2:30.

Today was supposed to be my day off but the lady that works my off days had to have oral surgery yesterday and called to see if I'd cover.  Of course I said yes, :::sigh:: without thinking first and 5 seconds after I said yes I remembered radiation.  But she was in a lot of pain and was going to come in if I wouldn't cover.  So a coworker and I told her I'd do it and we made arrangements for me to come in after radiation, only missing 2 hours.  We discussed it with the boss before we left and he was fine with it.  I found out that my coworker got flack for trying to play office manager, by the office manager.  But I was happy to hear that she retorted back with "well you weren't here, someone had to make a decision".  Funny thing is, the ones that were complaining got more work done that if it were a regular day.

I got up early so I could take mom and auntie to pick up the mail at auntie's apartment before radiation.  Everything was going smooth until we got to the cancer center.  I went to ask the technician if we were to early and she should wait to change until it was closer to her appointment time.  He said they've been trying to get ahold of people all morning and left messages at several locations for my aunt.  The radiation machine had a leak and they wanted to treat her today but weren't sure when it was going to be done.  He check with the repair guy and he said about 30 minutes, I told him that I had to be at work by noon but understood the delay, and he said he'd get her in first.  He's a sweet kid.  I took the obasans out to the lobby where the chattered in Japanese, all of a sudden my mom's tone changes, and her voice raises and then my aunt snaps back at her.  I had to calm them both down and I felt like I was the parent breaking up the kids as they argue.  The technician came out and said they'd have her in before 11:00 but it would be cutting it close, I told him not to worry, that I'd stay as long as we needed too.  I finally took auntie in the back to change, and went to ask the technician about a situation we were having physically for auntie.  I came back and mom was yelling at her through the bathroom door.  Auntie had gone in there and locked to door so mom couldn't get in, mom was getting upset because she didn't even take her robe.  I had to settle mom down explaining that she's using the bathroom and that she'll put the robe on when she's done.  My mom starts ranting outside the bathroom about how bad my aunt smells and how she's smelling up the house.  I again had to chastise her about this.  She's ranting about how she doesn't move around, all she does is sleep.  I had to explain to her AGAIN that the doctor said it was okay, and to let her sleep.

The bottom line is, auntie is getting weaker physically and mom is getting weaker mentally.  Mom went through watching pop deteriorate and she's doing it again with her sister.  But this time, her frustration is turning to anger.  Once we got auntie into treatment we went out front to wait.  Then mom starts getting mad a me, raising her voice.  I'm calmly explaining that she needs to have patience, she need to let people help her because her eyes and ears are great.  She's raising her voice telling me that she can here, but her sister doesn't answer.  I tell her, "mom, auntie hears, you just don't hear her answer back, I'd seen you do it several times, it not just her".  She's yelling at me to a point where I just start to ignore her.  Finally she stops, then she starts to make conversation.  I go to check on auntie and she's just changing so I send mom in to help her.  I apologize to the desk staff for the yelling, they were so sweet and understanding. I know that when you're sick, upset, or scared you take your anger out on those you love, I've done it and it's why I live alone.  I can see mom's frustrations and I have to keep telling her "patience, take a deep breath and then let it out".  

I get them back to the house, help auntie up the steps in the house and ask I've got my hands on her waist helping her up, she's shoving money in my pocket telling me to pick up my lunch on the way.  I head to work, stop for fast food, and then on the freeway.  I'm not sure what I was thinking but I miss the turn off and have to transfer freeways and turn around.  I'm 10 minutes late but I finally get there.  I'm trying to get everything done at work.  Head into the back to put a bill into a file, see the file on the doctor's desk so I turn around heading that direction and snag the foot of the chair with my foot.  BIFF right into the wall, knee, foot, hand.  Why couldn't it be my head, at least nothing would have been hurt then.  Finally get off, spend a bit of time with pup and then head back to mom's house because I picked up a couple of things she wanted on the way home form work.  We go through the paperwork that they asked my sister to check for them, and she tells them, have Jill do it.  What tha?  Finally got home and my niece had decided to watch tv loud enough for the entire neighborhood.  She hasn't been to work since last Wednesday and she only gets 8 hours of sick and 8 of vacation a month so I'm pretty sure she's on dock again.  Whatever.

In between all this my sister had me make several appointments for my mom, ears, eyes and dermatology.  Thing is, I'm calling to make appointment but not exactly sure what's going on and mom's not talking.  So last Thursday when I made the appointments for mom, I was able to get her a new primary physician and a visit that day.  I drive her over there and my sister calls another sister to look in on my aunt who's sleeping.  That's sister cops an attitude an asks "why? why does she have to be looked on, just tell her to stay in bed, then she won't fall", "why does mom have to go to the doctor, she's just probably stressed", "Why do I have do it".  This is the crap my sister and I get from my two older sisters.  We can't ask them to do anything because we'll get  "NO" followed by a whiney excuse and then a massive attitude.  So far, I'm pretty much hating 2008.

What tha?

I feel like out of four sisters and three brothers the only ones doing things are one sister and I.  The sister that has the Wednesday shift decided to let her step-daughter who's here on vacation take her car so she couldn't take her shift.  That's BOLLOCKS! One sister couldn't get out of work because she was in class, the other said some crap about period project, one of the other brothers was off-site for the day so  ended up having to call and get the day off.  This leaves my office in a pinch because I'm the receptionist.  The two older sisters seem to think that the jobs of the two younger sisters aren't important, because one is married with a 2nd income and well, nothing I ever do is important to them.  I feel like existing but no longer living.  

Don't get me wrong, I love my mother and my aunt but I'm so damn tired.  Auntie is getting weaker and sleeps more often, my mom is getting more and more stressed because she's trying to take care of not only my aunt but my brother as well.  She also knows that the two that are doing everything are the two that have just as many physical limitations.  

The weekend break was great, going to Reno and relaxing, not thinking about all this, but it was very short and now I'm back to square one.  I've been arguing to a point of preaching about how important my aunt's diet is.  My mom and my sisters fought me, telling me that "a little bit" and "she can have it today", no realizing that the two of those add up to one big mess.  When we met with the Radiation Oncologist I mentioned a problem my aunt is having.  The doctors asks if she's following the diet, I saw both my mother and my aunt suddenly turn deaf.  I explained how I've been trying get them to understand how she needs to eat but it's a fight.  The doctors looked at both my mom and aunt, points and me and says, "for now, she's in charge, you need to follow what she says you can and can't eat", she proceeded to tell them that the thing she could have little bits of are no longer allowed.  I had to explain that this was temporary until the next week when the doctor checks in.  Hey, I know she meant longer than a week but at least by saying until the next check they understood.

Auntie's walker is another story.  I finally got a call from the medical supply place today, looking for her insurance information, by the time I returned the call the girl had already called the doctor's office and got what she needed.  Umm, shouldn't she have done that in the first place?  Then she asks if I'd like to be transfered to delivery so I can set up a time and date, and I'm like "sure that'd be great, thanks".  Yeah, that wasn't happening, the guy already sounded exasperated because it's the afternoon and he may have to go out again, "I can't do anything until I get the order and it'll be delivered to the place on her records".  I ask, can't you take the change of deliver address down so at least if he does go out and have to make two trips?   The reply, "You have to call on Monday, and maybe you'll catch him before he leaves and if not you'll have to make arrangements".  I'm thinking, isn't that what I'm trying to do now?  Just because your lazy butt doesn't want to grab a pen and paper.

My Tuesday, Thursday shifts ended up being, Tuesday, Wednesday, Thursday this week.  Today was a doozy at that, we went to Radiation, then took my aunt to get her mail.  She ended up wanting to got get a pair of slippers in the apartment and then couldn't find them.  We spent over a half hour searching a tiny apartment for a pair of slippers that I easily could have gone out and bought a replacement pair but her mind was set on that specific pair.  Once we got back to mom's she fixed auntie lunch and mom and I headed out.  Mom wanted to go to the cemetery and then I took her to lunch.  When we got back to the house we had to hit my sister's list of appointments to make for mom, ears, eyes, and dermatological.  I was hitting a stone wall trying to find appointments for her, ears, July 11th, eyes, August 14, and dermatology sometime in September.  All this and I ended up getting her a new primary care, her old one was only taking morning appointments and by phone at that.  Phone appointments don't work well when the patient doesn't hear well.  It pained mom to lose that doctor but the new one seems rather on the ball, she actually got her in today at 4:30 p.m. and pretty much told mom she needs to lower her stress level.  Mom thought she had a cold, nope, no fever, no congestion, no cough, just stress and a change in her blood pressure medication.

I've been home for less than an hour now and the only things keeping me awake are 1.  I'm hungry and 2.  I've actually got a day to myself tomorrow.  And I'm totally upset because I've lost the face plate to my stereo in the car so no tunes.  DANG IT!

No Rest

Just when I thought the week was over I was so wrong.  Yesterday Auntie had to go in for a blood transfusion.  The procedure took about 3 hours but with check in and check out they were there about 5 hours.  One of my sisters took her even when I offered saying it was her turn.   It's nice to know she's looking out for me but her week was just as crazy and tiring.   I decided to head over to see how my brother was doing since everyone was out of the house and he still lives at home.  My plan was to find out if he got off his duff and found a new doctor and to make sure he was going for regular visits since his hospital stay awhile back.  When I got over to mom's all but one of my siblings were there, even the one that lives out-of-town.  After talking a bit I asked why auntie was left alone and if mom was going back to check on her?  I got a "no, she was tired, she went right to sleep, even though I was concerned I left it like the told me to, bad idea.  This morning, mom went over to check on auntie, sometime during the night she got up and fell, she couldn't get up and spent the entire night on the floor.  Mom couldn't get ahold of the sister that lives the closest because she doesn't pick up the damn phone, so she called home and got my brother.  My brother drove down the street and got my sister out of bed, then the both of them proceeded to auntie's.  That was followed with calls to my other two sisters and me.  When I got over there my aunt was sleeping and they were starting to clean up her apartment, which reeked because of her situation.  She had no more options, we cleaned up her apartment and moved her in with mom today.  Even when we left mom with her at her apartment and went to mom's to set up, mom tried to fight it but I wouldn't give in. 

One sister left with her daughter and son, my brother-in-law and nephew went back to unload stuff from mom's into their shed and my two sisters, me and my niece stayed to move her in.  After a break for dinner we started the whole bathing process and then getting her into bed.  All I can say is, if this every happens to me, I want to be put in a nursing home.

Today was supposed to for the things I couldn't get done during the week.  I didn't get a chance to hit the grocery store leaving me with no caffeine, not a pretty sight and since I hopped into the shower as soon as I got home, I just started laundry.  Oh and my dog hates me, my poor baby.

T GGGGGGGGGGGG I F!

This has been a hell of a week.  The lady that works the evening shift had a death in the family so I worked the late shift on Monday and Wednesday.  That meant working until 9:00 pm on Monday and 8:30 pm on Wednesday.  

On Monday she had the initial consultation with her surgeon who basically told her what we already knew, that she was going to need a Colostomy.  But this surgeon didn't look at anyone during the entire visit.  He apparently was looking at something else while talking to them and this left my aunt, mother and sister very uncomfortable.  My sister said he had no personality and even my comeback of "what do you expect from someone that works with assholes all day" couldn't lighten her mood toward him.

Tuesday was my turn for the doctor at 7:20 am and then off to radiation at 10:30 for auntie.  I felt so cooped up that I had to get out Tuesday evening so I hit up a friend, did dinner and walked around Fry's for a bit.

Wednesday was hell at work, not only did I have to work late but I had to actually get indignant with the son of a patient.  I'm not sure if it happens everywhere else but you're hard pressed to find a doctor here that sees you at the time of your appointment, and when you have a great doctor, you always have to wait.  This guy had been calling for weeks trying to get the doctor to do something that would likely result in the death of his mother, all because he wasn't willing to listen to her or the doctor.  We finally fit her in and because the doctor was behind he didn't want to wait.  All the crap he gave us and he wasn't willing to let his mother even see the doctor.  He was copping a major attitude with me and so finally I copped one right back telling him that all the other patients are willing to wait and him yelling at me wasn't going to get her put in front of anyone else, he made another appointment and left. Over an hour later when I led a patient into the exam room I was comforted by he and his mother pulling me aside and telling me that that man was totally wrong, totally a jerk and I handled it very well.

Thursday was radiation at 10:30 am and then the attorney at 1:00 pm.  This was a very long day for auntie, she's getting more and more tired and wobbly.  She pretty much fell asleep everytime we got in the car and at one point I turned around when we were at a stoplight to make sure she was still breathing.  She's supposed to meet with the radiation oncologist every Wednesday after her session but she ended up not doing that Wednesday.  Thursday, I asked the radiation nurse if she was supposed to meet with the doctor and she told me that the doctor was on vacation and she'd be meeting with the dr's associate after her session.  She went on to say that my aunt didn't take her labs.  I told her that she wasn't getting her blood drawn until Friday's appointment for her Chemo Oncologist and she got snippy saying that she needed weekly labs.  Normally I would have said okay but since she got snippy I got snippy right back and said that NO one told us we had to have weekly labs and that at no time during the orientation with us did she mention that.  I had made arrangements for the chemo oncologist's nurse to take her labs every other friday since she was going to see that doctor every two weeks.  The radiation nurse hands me a slip and says, "you can take her to the lab every other week then"  Mind you, if she was supposed to have labs every week, don't you think she'd have to have a lab slip to do that?. something we never got before that day.  Michelle the chemo nurse witnessed the whole conversation.  So I take the slip and go wait in the lobby with my mom, looking at the slip I noticed that nothing is checked, it's just a generic lab slip.  I go back in to ask the radiation nurse if the lab is going to know what to draw since nothing is checked and she gets all sweet and says, "Michelle says that since she'll be here everyday, she'll do the labs every Friday".  At that point I was like, THANK YOU MICHELLE.  The attorney appointment goes well, but once all the paperwork was signed and completed she tells the lawyer  "Now I can Die", not once, but three times in total.  I'm so worried that since everything is now in order, she's going to give up.  And I can see the fear in mom's eyes.  Auntie says that she needs prescriptions refilled and that she has no more, I notice one bottle has no refills which means contacting the doctors office.  I drop off auntie and mom, then head to the doctors office.  I then find out that auntie's primary doctor has left the practice with no notification to her patients.  What the hell?  So now, we have to find a new primary, but the turn around is that a lady we all grew up with is working as the office manager and said she'd help us out.  She'd get us in with one of the doctors in that location which is so much closer to where auntie lives.  When I got back there was the argument between me and my aunt about her not living alone, especially when she's now had two doctors telling her she shouldn't.  

Today, Michelle drew her blood before her session and apparently her hemoglobins are really low so they sent her straight to the hospital for some preliminary work and she has to have a blood transfusion tomorrow. I asked my boss about auntie's surgeon and he really didn't have much to say, not good, but not bad either.  He's suggested his own doctor and one of the girls in the office I work at also mentions this doctor not knowing I've asked the boss.  So I call our family friend that works at the primary doctors office and get her in next week so she can get checked out by her new primary doctor and they can refer her to a new surgeon.  I've been told that the new surgeon is blunt, he'll tell it like it is, but that's not a bad thing, but they also say he's got a great sense of humor which is a great thing.

Just when I thought next week would be much easier, I jinxed myself.  At least I won't be working late.  I don't envy my sister who's taking her turn tomorrow for the blood transfusion.  It's supposed to be a six hour procedure and she plans on working on the moving in with mom thing during that time.

Day Three Of Treatment

Third day of treatment and all is good still.  She doesn't feel sick or tired.  We were told this probably would happen it wouldn't be until a little into the second week that things will feel yucky.  At least she's optimistic that she won't get sick, that or just damn stubborn to accept that it will be coming.

Today's appointment didn't take long.  Of course there was the confusion from mom on whether or not I was taking them since I wasn't at her house yet.  She forgot again that I told her to meet me at Auntie's apartment so she could stay with her after the treatment.   :::bigheavysigh::: I got her there in plenty of time to change so they took her right in at 10:30 am and she was dressed and ready to go 20 minutes later, that was a nice treat.

After that I took them grocery shopping.  My aunt starts on one side of the store and slowly makes her way to the other side like a turtle.  My mom on the other hand is like the dang rabbit and she hops from aisle to aisle all over the store in no particular direction.  Sad part is, she's still done quicker than my aunt.  We dropped off my aunt and then mom headed home.  I just walked in the door and am so ready for a nap and Murphy, well, she's not a happy camper :(  Don't feel too bad for her, she got her own 12 piece of chicken fries the other day, spoiled poop..hehe

I think we're going to actually move auntie into mom's house this weekend whether she likes it or not.  It'll be so much easier on everyone, auntie, mom and the drivers.  Now to keep mom's health in place, which is not getting any easier. 

If I'm whooped now..what's to come?

The last few days have been a whirlwind.  Try toting around two 80+ year old ladies that can't hear.  I had to take yesterday off because the outcome of Tuesday's appointment led way to another appointment being made on Wednesday.

Wednesday's appointment was a CT Scan so the Oncologist can begin the treatment planning procedure which will take a few more days to complete.  This is when they'll figure out how many treatments will be needed and where to aim the radiation.  There was so much confusion about the medication, because there are two Oncologists, one for the follow-ups and one that's actually performing the radiation.  The nurse for one doctor said that she gave my aunt the prescription, then said she didn't, the Oncologist wanted me to get the prescription when I came back on Wednesday but the nurses knew nothing about it, what a runaround.   When we finally got the nurses to understand, the doctor had already left for rounds at the hospital, the agreement was that I'd come back on Thursday morning to pick up the prescription and with that we finally went home.

This morning was like trying to pull myself onto a boat after I'd fallen out.  Dragging myself out of bed was hell but I made it to pick up the prescription, but no doctor.   No doctor, no nurse and the other doctors staff knew nothing about it, apparently the doctor works out of the downtown office on Thursdays, you think she would have told me that yesterday.  At least one of the other nurses searched the desk and found the prescription. I should have known from the morning that the rest of the day wasn't going to work well.  I told mom that I'd be at her house by 10:00 so she could drop off the prescription before they went grocery shopping like they do every Thursday.  I get there at 10:00 and mom is gone, what the hell?  I track her down at the grocery store and she's telling me she has to go later to pick up the prescription, again, what the hell?  I finally get her to understand, she apologizes which makes me feel guilty and I drop the prescription off on my way home so they can pick it up after grocery shopping.  I get home, make a few more call, and lay down for one second and pass out, only to be woken up a bit later by mom calling.  The pharmacy didn't have all the medication so they had to go back tomorrow but it was going to cost $3300, WHAT THE HELL????  I call the pharmacy that proceeds to tell me that that is her copay, that it regularly would be $4410.  I call the doctor to find out what's going on. apparently the pharmacy had billed it to the wrong part on Medicare.  An FYI for people out there, if you get a prescription for chemotherapy (Xeloda), make sure they bill it to Medicare Part B, not D, D is usually for prescriptions but this is a treatment which should have no copay.  Thank goodness for Kenzie at the downtown office, she had me call the pharmacy and cancel it, and then faxed it to a specialty pharmacy that will deliver it to me tomorrow.

After calls back and forth to my sister, and another sister getting snippy with me because I needed her to call a doctor tomorrow, I'm so ready to pass out.  My sister that I'm going on vacation with in July talked about it and despite the other sister telling us to go, we've decided to cancel the trip.  We both need the vacation but neither one of us would forgive ourselves if something happened when we were gone.  My brother did that when pop was bad and had to come back early when pop went.

Monday will be the appointment that will ensure that all the points are lined up correctly for radiation, a dry run.  On Tuesday radiation will begin simultaneously with Chemotherapy.  We won't find out until Monday how many actual treatments she'll need.  We pretty much have the ride situation figure out for Monday - Thursday.  Because I'm off on Tuesdays and Thursdays I'll be driving, I really hope I can do all this and work.  Fridays are still a bit of a jumble trying to find people  but we'll figure it out.

I convinced auntie to move in with mom for at least six weeks to keep mom from driving and running around too much to check on her.  I hope I did the right thing, we were all thinking it but I had to break it to her.  I basically really didn't give her a choice, I pretty much told her this is what's best.  We'll all gather at mom's Sunday to clean out the back room and move auntie in.  I don't think one day is enough, mom has so much junk back there, I took home a little suitcase I used to play with as a kidlet and was full of stuff.  SHE KEEPS EVERYTHING!  I found not only a Spanish lesson from 9th grade but 5 1/4" floppies.. FLOPPIES!, and lava rocks from a vacation to Crater Lake when I was about 12.   ::sigh:: Pack rats run in the family.

Update

Prognosis, a big and long tumor in an awful place.  We have to go back tomorrow to start the treatment planning process.  They were understanding at work when I called which was nice.  Once the doctor has her attack plan situated it'll be 5 1/2 weeks of radiation and chemotherapy follow by maybe 4 weeks of rest and then surgery.  The radiation will be Monday through Friday for the next 5 1/2 weeks and should only take about 10 minutes a session but I was told to count on at least a good hour to complete and get out.  Chemotherapy will be administered simultaneously in a pill form which is a lot better than having to sit with a needle in your arm.  It's a sad reality when you're handed a packet which includes a step-by-step Advanced Directive Booklet.  From the time the doctor said 5 1/2 weeks my aunt's face dropped and she really just stared after that.  Then it was the comments of, I don't think I can make it that long and the pep talks about having a positive attitude, which seems hypocritical coming from me.  The worse part is her finally realizing that even after the radiation and chemotherapy that's she'd still need surgery and that it was most likely going to be a colostomy.

And my sister came to the realization that our vacation in July, something we all really needed, will have to be canceled.

And I thought it was crazy before...

Question: Why am I up at such an disgusting hour on my day off?  

Answer: Today is when we figure out what life is going to be like for awhile.

Auntie had been sick since before Thanksgiving and due to stubborn situations and lack of a new doctor that would take her insurance we didn't get her into see one until after the new year.  From that time on, I thought things were crazy.  The four nieces taking turns to transport her and mom to all the appointments.  Trying to coordinate results and instructions was a bit difficult.  Four different people, taking her to three different doctors, it was crazy.  

It was try all these medications, then a pacemaker, get her healthy enough for a colonoscopy and then wait for the results.

The colonoscopy was ugly, massive malignant tumors and colon/rectal cancer.  Now it's on to the Oncologist and today is the radiation consultation.  The sister that took her to the primary doctor was told that it would be 4-5 weeks of radiation therapy, 5 days a week for 2 1/2 hours a day.  And today is my turn to take her, so off we'll go to the South Sacramento Cancer Center for a 9:30 am consultation in hopes, well, honestly, my hopes aren't up.  My sister was already told that most people her age and in her condition don't complete the regiment.  

I guess this blog is a way for me to vent and document the process.  I better peel my butt of the chair and head out, the traffic is already back up outside due to the I-5 closure.

Oh and the News 10 helicopter can bite me.  Two days in a row that damn thing has flow above up early in the morning to watch the commuters crawl through the detours.  Do they not realize that some people down there are trying to sleep?  And they were up there again when I got home from work.  I'm really hating News 10 right now.